CNTR's Injury Research Engagement Project

We know that engagement of patients, caregivers, and other stakeholders in trauma-related Patient Centered Outcomes Research (PCOR) and Comparative Effectiveness Research (CER) will ultimately benefit those patients.

This project is establishing a patient and caregiver Injury Research Engagement Panel (I-REP) that will partner with trauma researchers in the conceptualization and conduct of their research. The I-REP will improve the quality and relevance of studies by streamlining and simplifying the process of engagement, enabling researchers to easily collaborate with these important stakeholders. We will actively engage patients and caregivers who may benefit from trauma CER to assure that the outcomes we measure and the questions we research are meaningful, respectful, trauma-informed, and relevant to the injured patient.

Working with the Trauma Survivor Network (TSN), the Society of Trauma Nurses (STN), and The Health Alliance for Violence Intervention (The HAVI), the I-REP will be an ethnically and geographically diverse coalition of patients, families, and caregivers who represent the continuum of injury care, all injury severities and injury types, including intentional and unintentional.

Injury Research Engagement Project Objectives

1. Establish a stakeholder Injury Research Engagement Panel (I-REP) to partner with trauma researchers conducting CER and PCOR from conception to dissemination
2. Develop strategies regarding the informed consent process with patients and legally authorized representatives in emergency settings, and methods that increase follow-up participant engagement
3. Conduct reciprocal education between patients/caregivers and researchers/clinicians