Sharing and Managing Research Data –
The National Trauma Research Repository
CNTR is the architect and manager of the National Trauma Research Repository (NTRR), which launched in 2018. The NTRR stores the study data produced in the course of trauma clinical research and makes it available for subsequent use, increasing its utility. It also allows for real-time entry of study data for single and multisite studies. CNTR partners with researchers to develop clinical research forms using existing common data elements that increase data harmonization across studies. CNTR also assists investigators in developing data sharing plans that comply with the evolving data sharing requirements of journal editors and funders.
CNTR is currently working with the NTRR Executive Steering Committee to define the Trauma Core Common Data Elements (CDEs) to be recommended for studies being uploaded into the NTRR. The NTRR will be available by fall 2024 for study data upload and download of aggregated data sets for secondary analyses.
To view the proposed Trauma Core CDEs, the mapping of NTRRv1 to FITBIR Core CDEs, and Attribute Comparison spreadsheets, CLICK HERE.
CNTR staff members are relentless in their adherence to deadlines and pursuit of study objectives. The National Trauma Research Repository launched right on schedule and with impeccable timing—the month before new rules for data sharing were being adopted by international medical journals.