Sharing and Managing Research Data –
The National Trauma Research Repository
CNTR is the architect and manager of the National Trauma Research Repository (NTRR), which launched in 2018. The NTRR stores the study data produced in the course of trauma clinical research and makes it available for subsequent use, increasing its utility. It also allows for real-time entry of study data for single and multisite studies. CNTR partners with researchers to develop clinical research forms using existing common data elements that increase data harmonization across studies. CNTR also assists investigators in developing data sharing plans that comply with the evolving data sharing requirements of journal editors and funders.
CNTR is currently gathering comments and suggestions regarding the Trauma Core Common Data Elements (CDEs) to be required for studies being uploaded into the NTRR. The NTRR is being integrated with the Federal Interagency Traumatic Brain Injury Research Informatics System (FITBIR) and will be available to investigators for upload of data from your investigations and download of aggregated data sets for secondary analyses. Thank you for engaging in this process to ensure the NTRR is maximally useful and effective.
To view the proposed Trauma Core CDEs, the mapping of NTRRv1 to FITBIR Core CDEs, and Attribute Comparison spreadsheets, CLICK HERE.
NTRR Trauma Core CDEs Comment Form
Submit your comments and suggestions about the Trauma Core CDE set for the National Trauma Research Repository.
CNTR staff members are relentless in their adherence to deadlines and pursuit of study objectives. The National Trauma Research Repository launched right on schedule and with impeccable timing—the month before new rules for data sharing were being adopted by international medical journals.